Creating a Global Alliance to Enable Responsible Sharing of Genomic and Clinical Data

Robert Cook-Deegan, MD, IGSP and Sanford School of Public Policy. Robert Cook-Deegan served as Director for Genome Ethics, Law & Policy from 2002-2012. He was previously director of the Robert Wood Johnson Foundation Health Policy Fellowship program (2000-2002) at the Institute of Medicine (IOM), National Academy of Sciences, a Robert Wood Johnson Health Policy Investigator at Georgetown University (1999-2002), and a seminar leader at Stanford-in-Washington (1996-2003). He worked at The National Academies in various capacities from 1991 until coming to Duke. He is the author of The Gene Wars: Science, Politics, and the Human Genome (New York: Norton, 1994; paperback 1996; tr. Korean 1995, Japanese 1996) and an author on over 200 articles. Click here for more information.

Suggested Readings:

• Broad Institute, Creating a Global Alliance to Enable Responsible Sharing of Genomic and Clinical Data, June 2013. Available here.
• Broad Institute, Global Genomic Data Policy Brief. Available here.