S&S Dinner Dialogues, with Dr. Jessie Tenenbaum - De-Identified Clinical Data in the Genomic Era
Event Details
US law permits secondary use of de-identified clinical data for research purposes without a patient’s knowledge or consent. But biospecimens, and genomic sequence data derived from them, are increasingly linked to clinical data in the era of genomic and precision medicine. What are the risks involved, and where should the limits lie?
Video & Readings:
- Every Patient a Subject – SLATE
- A genome hacker’s experience with the privacy of shared data – Yaniv Erlich, TED Talk
Dr. Jessica Dale Tenenbaum is a faculty member in the Division of Translational Biomedical Informatics in the Department of Biostatistics and Bioinformatics.
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Where to meet:
Selected attendees will be notified via email several days in advance of the dinner with details regarding meeting location. All dinners will be within reasonable driving distance to Duke campus.
Science & Society will also provide a shuttle for those unable to arrange transportation to the dinner dialogue location. Shuttles will depart 30 minutes before the scheduled event from the front entrance of the North Building on West Campus. Click here for a map.